Thanks!

Truly, deeply, thank you!!!! -to Natalie, EDS-UK Danny, Linda, Roger, Tom, Nige, Michelle, Phoenix, Cat, Sue, Steve, Anne, Majka, Roger, Ashleigh & Lauren ….for putting up with this sore-sorry-for-herself-sad-sack the last 16 days!

I’ve had an almost endless supply of hot water bottles, cups of (hot-of-course) tea, warm beds, wonderful chats, warm meals, the odd snack, two AMAZING roast dinners, and most everyone has done all the thinking for me through the brain fog!

I hope I haven’t come across as too unappreciative! Because I truly truly am so very thankful! You’ve all, one way or another filled my love tank, gently pushed me on to the next step… and now, just a little way to go and Daisy and I will be home in Malta!

Thank you all!!

PS: Thanks so much to those who’ve signed on the easy, no-spam newsletters I send out no more often than monthly (and believe me, I miss sending half of those)!

Monthly update newsletter:

Where you can find and follow Jennifer:

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@JPeaSmith

The Pino Outcome:

I love this photo!! I look so normal! But here’s what it doesn’t show:

  • That I couldn’t walk at all! We’d ridden for over an hour. My leg muscles are amazingly strong considering how little work they get to do in real life. But it was lunch time so we stopped for a break, he helped me get off, and that was it… In the photo I’m sitting on the side of the bike because I couldn’t go any further. Yet I was able to get back on again (with help) and ride another hour!
  • The photo also hides my sore face. I smashed my face a few days ago and have a fat lip etc.
  • This is ALL I did yesterday. He let me sleep in as long as possible and got ready for the day without me. He woke me late morning in time to eat then we drove to the Pino, we rode, then I barely made it back to camp again for a shower and bed. I was in bed again by 4pm and didn’t even have the energy to read.

So…. don’t confuse my ability to ride with my ability to walk, and don’t forget this took all a day’s energy to do and there was nothing left.

Now we’re in the process of trying to buy one. This is a game changer for me and in a completely different way, a game changer for him. It’s my only option for keeping strong right now. It could take months to get one, but we’re praying hard for another Pino Miracle and that we’ll have one well before the end of the year! So watch this space!

(In the mean time, it’s back to a few short metres of heavy crutch walking a day and that’s it… it’s very difficult to be given such freedom then having it taken away!

Gent EDS Conference!

They forget (in love) that I can’t walk at all with out my crutches and even then it’s for no more than about 20 minutes at a time. And twenty minutes of agony at that!I’m in bed almost ALL the rest of the time even for many meals.

The last two days we diverted our rough plan and drove to Belgium so that I could attend the EDS conference in Gent/Ghent yesterday. I’m soooo glad I went, I met so many amazing people including some of the world’s leading specialists in #TMJ #Pain and many other things. 12 speakers in all, over nine hours, was beyond exhausting but so so worth it!

Highlights for me were:

  • Meeting another EDSers for the first time EVER (other than my own children).
  • Chatting in real life with so many of them (there were about 50 at the conference I’d say?)
  • Being in a room where splints, wheelchairs, braces, zebra stripes and bandages are the norm.
  • Hearing specialists and doctors talk about EDS from decades of experience…
  • SOOOOO much validation it’s incredible and difficult to put into words.
  • Crying (sobbing) because the collective pain levels in the room must have been through the roof! And it wasn’t just from me!

Best of all:

  • Meeting Dr Helen Cohen, one of the world’s top pain doctors! I spent about half an hour with her and I don’t think I’ve ever been so in awe of another human being !! She was soooo good, told me I’ve nailed my own pain strategies and I can’t tell you how encouraging that was.
  • Learning so many new teeny tiny things (& a couple of big things) to tweak my life for the better!!

It was all a HUGE reminder that:

  • My new book is soooo needed and important!
  • That I need to get better at reminding those who love me how crippled I am! I’ve been getting lots of encouraging messages lately saying people hope I’m enjoying walking around Europe and having a wonderful time. They forget (in love) that I can’t walk at all with out my crutches and even then it’s for no more than about 20 minutes at a time. And twenty minutes of agony at that!I’m in bed almost ALL the rest of the time even for many meals. No, this trip isn’t making it worse, I’d be in bed at home or in Molly’s bed but at least the scenery changes 😊

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PS: Thanks so much to those who’ve offered to support and keep asking where and how! I’ll keep these links at the bottom of my posts for the next month 🙂 They’re the easy, no-spam emails I’ll send out no more than weekly (and believe me, I miss sending half of those) till the book launches and you can get your free copy!

Hare & Tortoise

Main email group:
Team Tortoise:
Team Hare:

Where you can find and follow Jennifer:

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@JPeaSmith

The Bit I Hate!

savingpng-5All I want to do is write, and read, and have conversations over tea. I don’t want to edit, or gather up support, or beg people to sign up or share or get involved in interviews.

When I open my email to find requests to write for The Mighty or the EDS Society, or to feature somewhere (watch this space, there are a few those coming up), I love it! They’ve come to me, they know what they want and need, and they choose to have me there. But when one of my books come out (this is my second), I need to take time away from editing (which I also don’t love), and write emails, and write posts, and beg… it’s awful!

In the “olden days” Publishers would do that for you. Now even with the most important publishers, should you get a contract, built into that contract is how much you also have to do your own legwork, gather your own support, and build your own team. Ugh!

So this week I’ve hidden from most of it by doing the other important work of editing, editing, and more editing… and playing with paints, pens, and voila! I have two brand new book covers!

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PS: I maybe shouldn’t have made it sound that easy! There’re four weeks of work in those babies!

PPS: If you’d like to sign on anyway, and get involved, sign on for one or more of the easy, no-spam emails I’ll send out no more than weekly (and believe me, I miss sending half of those) till the book launches and you can get your free copy!

Launch Teams 04

Main email group:
Team Tortoise:
Team Hare:
The Editing Team:

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Where you can find and follow Jennifer:

YouTube |Blog | The Mighty | Facebook | Twitter | Pinterest | Goodreads | Amazon

@JPeaSmith

 

New Book Coming October!!

In case you missed it, today I sent out one of my rather rare Authory newsletters, inviting people to join my Launch Team for my next book which comes out at the end of October.

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I’m beyond excited for this one as I’ve learnt so much since we launched The Lion and the Peacock last year, and with over 11,000 downloads with that book, we’re hoping to do even better with this one. I’m a little overwhelmed with writing and guest opportunities at the moment but I feel they’re all important in different ways and for different reasons. And most of all they propelled me forward and gave me the extra courage I needed to make this happen.

So while my health has been a huge problem lately and we’ve been living out of a suitcase for 8 weeks now, bed for me means artwork, writing, and doing all the behind-the-scenes things that make a book happen. And I need to get them behind me so we can finish editing this book!

We fly to Malta tomorrow to find a new temporary home and get ready to head for the UK and the campervan for October on the road (more about that later).

So if you’d like to be a part of the process and hadn’t yet signed on for the emails which are no-spam, behind the scenes, personal, and get a hint of the publishing process (good and bad) then it’s not too late! Sign on here: http://eepurl.com/cvljU9

You’ll also get to see the cover first, the artwork first, and have the opportunity to win prizes and be part of the online launch party 🙂

Or, if you have any other questions, shoot me an email on JPeaSmith@KingsRoadChronicles.com

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Where you can find and follow Jennifer:

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@JPeaSmith

Why I stopped writing my Memoir to Share my Anxiety Story

For most of 2016, I had no choice but to spend every waking hour adjusting to my new normal after losing most of my mobility due to complications with my Ehlers-Danlos Syndrome. It was certainly nothing like what I had planned for the year and at first, I thought that life as I had known it was gone forever. In many ways I was right, it was gone forever, but it also opened the door to a part of me that I had always known was in there but never had the time, courage or circumstance to bring out. Hours upon hours every day in bed gave me the unique opportunity to start to write, and I soon found my voice and my space to tell my story.

A very long and complicated story that is going to take a while to take apart and put back together again into chunks that make great books which are easy for people to read and get something out of. After ten months of hard and often emotionally painful work, I had written enough for two full-length novels (which I hope will come out this year some time). But when I got to the part where I talked about the thread of anxiety and panic attacks that had run through a decade or more of my journey, I stopped there.

When I sit down to write every day I generally let my fingers and my soul tell the story for me and I look forward to seeing what comes out. I had got the anxiety bits out in a few days of hard writing but in the week or so that followed and I sat down to write each day, my soul and my fingers stayed on topic and never moved from it. They kept going back and back to the anxiety and panic, and I realized then that I was supposed to stop there for a reason. When you live in a story day to day, week, month and year to year, it is so easy to get lost in the bigger picture and to forget how hard we worked or how much we achieved.

I had battled hard with anxiety and it very nearly consumed me completely. As anxiety and panic attacks merged with some of the serious side effects of my as yet undiagnosed genetic condition, the cocktail of symptoms from both made it even harder to separate them. Serious issues were chalked up to anxiety and dismissed, while some of the scarier effects of the anxiety were wrongly treated as life or death situations. The whole mess created even more fear and confusion which of course only fed the anxiety.

My journey through so many failed attempts to solve my anxiety as well as my medical issues was a long and painful one which ultimately led me to break point, where I literally landed up on the floor of the church foyer across the road begging for help. Thankfully the poor stunned receptionist who had no idea what to do with me remembered that a trauma counselor was on call and phoned him immediately.

Next door to the church was a library and between the kind advice from the retired counselor and the medical books on the shelves, over the next four months, I began to put all the pieces of information together that I needed to turn this all around. And in the end, I eventually did. I won! I beat my anxiety permanently.

I realized two things as I was writing all this; that I don’t want everyone to have to buy my novels in order to get what may help them with their own anxiety, and that the anxiety thread is way too important to squash into a single chapter among dozens of other things. And so was born the idea of a short (less than an hour) book that tells the stripped down version of how I beat my anxiety and the tools needed to replicate it.

And so was born the idea of a short (less than an hour) book that tells the stripped down version of how I beat my anxiety and the tools needed to replicate my success. I am still going to tell all the other stories, but until then, The Lion and the Peacock – How I Conquered Anxiety, will be available on Amazon Kindle from the 8th of January 2017. You can sign up here to get an email as soon as it is out as well as when it will be out in paperback, and other exciting news:

Yes please, SIGN ME UP! (no spam I promise!)

You can also follow, support and share exclusive pictures and get up-to-date news on all my books on FacebookTwitter, or Instagram.

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Book “It’s Mah Eeds”

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It’s official, I have now finished draft one of book one in the four book series…. “It’s Mah Eeds” will hopefully be out by this time next year.

Huge Thanks to NaNoWriMo for helping to make this happen … I was hoping to do 60 thousand words by the end of November but I hit just over a hundred thousand (which includes about 30thousand words of book 3) … (book 2 is already done, just waiting for book one).

Now starts the editing part, which I am guessing will be done by Feb some time. My January is booked up with loads of wedding prep so I’m aiming at editing this baby by the end of this year, but if not it will likely be Feb some time…

img_8760If you would like to be on the mailing list for updates no more often than monthly, then just comment your email address below and I will add you, or email me on jenniferpeacocksmith@gmail.com

Thanks so much for your support already and I look forward to the next leg of the journey!!